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Status of Palliative Care Practice Quality in US Today:

  1. Cleeland CS, Gonin R, Hatfield AK, Edmonson JH, Blum RH, Stewart JA, Pandya KJ.  Pain and its treatment in outpatients with metastatic cancer.  New England J Med. 1994;330:592-6.
  2. Doyle, D., Hanks, G. & MacDonald, N. (1998). Introduction (p. 3-8). In D. Doyle, G.W.C. Hanks & N. MacDonald (Eds.). Oxford textbook of palliative medicine (2nd ed.).  Oxford: Oxford University Press.
  3. National Hospice and Palliative Care Organization (2001, December). NHPCO facts and figures on hospice care in America www.nhpco.org/public/articles/FactsFigures-May02.pdf  
  4. SUPPORT Principle Investigators (1995). A controlled trial to improve care for seriously ill hospitalized patients. JAMA 274:1591-8.

Palliative Medicine Education for Physicians:

  1. Emanuel, L.L., von Gunten, C.F. & Ferris, F.D. (1999). Education for physicians on end-of-life care (EPEC). Participant’s handbook. Robert Woods Johnson Foundation
  2. Emanuel LL, von Gunten CF, Ferris FD. The Education for Physicians on End-of-Life Care (EPEC) curriculum, Participant's Handbook.. The American Medical Association, Chicago, 1999. ALL MATERIALS CAN BE OBTAINED FREE FROM THE WEB AT http://www.epec.net/content/participantshandbook.html (including the Participant's Handbook and accompanying PowerPoint slides).  If you want to purchase a copy the phone number to obtain a copy: 800-621-8335 (mention Product Number OP071299). Cost is $75 for Participant's Handbook, $99 for Trainer's Guide.  
  3. Storey, P. & Knight, C.F. (1998). UNIPAC One:The hospice/palliative medicine approach to end-of-life care. American Academy of Hospice and Palliative Medicine. Dubuque, Iowa: Kendall/Hunt Publishing Company. Weissman, D.E., et al. (2000). Improving end-of-life care. Medical College of Wisconsin, Inc.    

Palliative Care Reference Textbooks:

  1. Berger, A., Portenoy, R.K., & Weismann, D.E. (Eds.). (1998). Principles and practice of supportive oncology. Philadelphia: Lippincott-Raven Press.

  2. Doyle, D., Hanks, G. & MacDonald, N.(Eds.)(1998). Oxford textbook of palliative medicine (2nd ed.) Oxford: Oxford University Press.Ferrell, B.R. & Coyle, N. (Eds.)(2001).Textbook of palliative nursing. Oxford: Oxford University Press.

  3. Foley, K.M. & Gelband, H. (Eds.)(2001). Improving palliative care for cancer (p. 9-32). Washington, D.C.: National Academy Press.

  4. Joishey, S.K.(1999). Palliative medicine secrets. Philadelphia: Hanley & Belfus. (a user-friendly pocket manual).

  5. Smith, S.A. (2000). Hospice concepts: A guide to palliative care in terminal illness (p. 1-16). Champaign, Illinois: Research Press.

Pain Management:

  1. Abrahm JL. Management of pain and spinal cord compression in patients with advanced cancer. ACP-ASIM End-of-life Care Consensus Panel. American College of Physicians-American Society of Internal Medicine. Ann Intern Med 131:37-46, 1999.Agency for Health Care Policy and Research, Panel on Cancer Pain Management. Clinical Practice Guideline Number 9: Management of Cancer Pain. US Department of Health and Human Services, AAHCPR Publication No. 94-0592. March, 1994.

  2. Levy MH. Pharmacologic treatment of cancer pain. New England J. Medicine 335:1124-1132, 1996.Long D.M. (2000). Contemporary diagnosis and management of pain (2nd ed.).. Handbooks in Healthcare Co., Newton, PA.

  3. Porter J; & Jick H. Addiction rare in patients treated with narcotics [letter]. N Engl J Med 1980;302(2):123.

  4. Portenoy R. (1998). Contemporary diagnosis and management of pain in oncologic and AIDS patients (2nd ed). Newton, PA: Handbooks in Healthcare Co.

  5. Principles of Analgesic Use in the Treatment of Acute Pain and Cancer Pain. Fourth edition. American Pain Society, Glenview, IL, 1999. To order a copy, call 847-375-4715 ($7.00 each + $3.25 for shipping; allow 2 to 3 weeks for delivery). An excellent pocket reference guide.

  6. Rogers AG. 22 problems in pain control—And ways to solve them. Primary Care and Cancer, May 1998.

  7. Weissman DE, Dahl JL, & Dinnorf PA. Handook of Cancer Pain Management, 5th Edition.. Wisconsin Cancer Pain Initiative, Madison, WI, 1996. To order on line go to http://www.wisc.edu/wcpi/; click on "Purchase Materials" button in left margin ($4.00 each + $0.75 shipping). An excellent pocket reference guide.

  8. Storey P & Knight CF. Hospice/Palliative Care Training for Physicians:  A Self-Study Program.  UNIPAC Three:  Assessment and Treatment of Pain in the Terminally Ill. American Academy of Hospice and Palliative Medicine, 1996.

  9. Storey P & Knight CF. Hospice/Palliative Care Training for Physicians:  A Self-Study Program.  UNIPAC Three:  Assessment and Treatment of Pain in the Terminally Ill. American Academy of Hospice and Palliative Medicine, 1996.

  10. Thorns A, & Sykes N. Opioid use in the last week of life and implications for end-of-life decision-making. Lancet 2000; 356:398-399.

    Management of Breakthrough Pain

  1. Simmonds MA. Management of breakthrough pain due to cancer. Oncology 13:1103-1108. 1999.

     Spiritual Aspects in Pain Management

  1. Clark D. ‘Total pain’, disciplinary power and the body in the work of Cicely Saunders. Soc Sci Med 49:727-736, 1999

  2. Newshan G. Transcending the physical: spiritual aspects of pain in patients with HIV and/or cancer. J. Adv. Nurs. 28: 1236-1241, 1998.

  3. McBride JL, Arthur G, Brooks R, Pilkington L. The relationship between a patient’s spirituality and health experiences. Fam Med 30: 122-126, 1998.

Management of Non-Pain Symptoms:

  1. Storey P and Knight CF.  Hospice/Palliative Care Training for Physicians:  A Self-Study Program.  UNIPAC Four:  Management of Selected Non-pain Symptoms in the Terminally Ill. American Academy of Hospice and Palliative Medicine, 1996.
  2. Storey, P. Primer of Palliative Care. American Academy of Hospice and Palliative Medicine, Kendall Hunt Publishing, 1994. To order, call 800-228-0810 ($4.95+shipping).

Psychosocial Aspects of Palliative Care:

  1. Corr, C., Fuller, H., Barnickol, C.A., & Corr, D.M. (Eds.), (1991). Sudden Infant Death Syndrome: who can help and how. New York: Springer Publishing Co.

  2. Janosik, E., (1994). Crisis counseling: A contemporary approach (2nd ed.)l. Monterey, CA: Wadsworth Health Sciences Division. [Academic, not an easy read, but useful.]

  3. Kubler-Ross, E. (1969). On death and dying. New York: MacMillan.

  4. Rando, T.A. (1984). Grief, dying and death. Champaign, IL:  Research Press.

  5. Rando, T. A. (Ed.) (1986). Parental loss of a child. Champaign, IL: Research Press. [This author has several books and articles specifically about parental grief.]

  6. Wolfelt, A. (1988) Reconciliation needs of the mourner: Reworking a critical concept in caring for the bereaved. Thanatos Spring, 1988 6 - 10.

  7. Wolfelt. A.(1987). Understanding common patterns of avoiding grief. THANATOS 12(4), 10-13.

  8. Wolfelt, A. (1991). Toward an understanding of complicated grief: A comprehensive review. American Journal of Hospice and Palliative Care, 8(2), 28-30

  9. www.centerforloss.com - web site for Dr. Alan Wolfelt, Director , Center for Loss and Life Transition. Educational material related to grieving, bereavement and mourning 

Spiritual Aspects of Palliative Care:

  1. Storey P, Knight C. American Academy of Hospice and Palliative Medicine UNIPAC TWO:  Alleviating Psychological and Spiritual Pain in the Terminally Ill, 1997.  

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